jewelsangel
09-25-2009, 11:33 AM
Dear friends,
I realize it has been months since I have posted here. I have been checking in every once in a while, but life has been so busy. This isn't typical of me but I thought it couldn't hurt to do this post.
My partner has Lupus. It is a systemic disease and it affects every part of her being. A lot of the passion and closeness we used to share has suffered because of her fatigue and reduced interest, etc. She has several medicines to take every single day - and none of them can cure her symptoms - just "try" to manage them. The side effects sometimes can be even worse. Because we are together and are who we are, we don't have the support of friends like we used to. We are still very much in the closet with family and Christian friends. Many of them would say that lupus is a punishment for being homosexual. I struggle with that idea myself...feeling guilty that because I might love her in the "wrong" way, that I have caused (or at least not helped) this situation.
Friends, I am writing to ask for support for the Lupus Walk this year and for Lupus research in general. There hasn't been a new medicine developed in 50 years. Lupus doesn't just affect the person, but anyone that is close to them.
Please consider supporting our team that is walking in the Washington DC Lupus Walk on November 7, 2009. Our team website is http://walk.lupusresearch.org/site/TR/Events/DC?pg=team&fr_id=2170&team_id=48950 . We are "Butterfly Kisses". If you can't support financially, please pray for us and the millions of people affected by this terrible disease. For more information about lupus research see www.lupusresearch.org.
Love to you all!
I realize it has been months since I have posted here. I have been checking in every once in a while, but life has been so busy. This isn't typical of me but I thought it couldn't hurt to do this post.
My partner has Lupus. It is a systemic disease and it affects every part of her being. A lot of the passion and closeness we used to share has suffered because of her fatigue and reduced interest, etc. She has several medicines to take every single day - and none of them can cure her symptoms - just "try" to manage them. The side effects sometimes can be even worse. Because we are together and are who we are, we don't have the support of friends like we used to. We are still very much in the closet with family and Christian friends. Many of them would say that lupus is a punishment for being homosexual. I struggle with that idea myself...feeling guilty that because I might love her in the "wrong" way, that I have caused (or at least not helped) this situation.
Friends, I am writing to ask for support for the Lupus Walk this year and for Lupus research in general. There hasn't been a new medicine developed in 50 years. Lupus doesn't just affect the person, but anyone that is close to them.
Please consider supporting our team that is walking in the Washington DC Lupus Walk on November 7, 2009. Our team website is http://walk.lupusresearch.org/site/TR/Events/DC?pg=team&fr_id=2170&team_id=48950 . We are "Butterfly Kisses". If you can't support financially, please pray for us and the millions of people affected by this terrible disease. For more information about lupus research see www.lupusresearch.org.
Love to you all!